PPI Resources

Resources

Some resources that might be helpful as an introduction to PPI in research are below. 

An introduction to PPI

• Briefing notes for researchers: involving the public in NHS, public health and social care research
• National Institute for Health Research. Patient and public involvement in health and social care research: A handbook for researchers by design services London
• NHS Health Research Authority Principles for PPI
• Young Researchers: Guidance
• Young Researchers: Toolkit

Standards for PPI

• UK Standards for Involvement  

Budgeting for PPI

• PPI Ignite Network at DCU Budgeting for PPI advice
• Payment Guidance For Researchers and Professionals [Internet]. National Institute for Health Research; 2020. Available here.

Writing a lay abstract/Writing in plain English

• NALA seminar
• NALA’s plain English resources on our website Simply Put.
• The plain English checklist for documents
• Writing and Design tips 
• NALA’s definition of plain English.
• You can use the Hemingway app to check the reading level of your lay abstract- you want it to be 9 or below. 
• The English Vocabulary Profile checks the level of English required to understand specific words and suggests alternatives.

Reporting and evaluating PPI

• Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ [Internet]. 2017;358. Available from: http://www.bmj.com/content/bmj/358/bmj.j3453.full.pdf
• Boivin A, L’Espérance A, Gauvin F-P, Dumez V, Macaulay AC, Lehoux P, et al. Patient and public engagement in research and health system decision making: A systematic review of evaluation tools. Health Expectations [Internet]. [cited 2018 Aug 1];0(0). Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/hex.12804
• Brett J, Staniszewska S, Mockford C, Herron‐Marx S, Hughes J, Tysall C, et al. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations. 2012;

PPI Ignite Network at DCU Seminar Recordings

• An Introduction to PPI (DCU PPI Ignite)
• PPI in grant applications (HRB)
• Developing a PPI project (Liam MacGabhann and Brendan)
• Communicating with patients, the public and patient organisations (Avril Kennan, HRCI and Laura Brady, Fighting Blindness) 
• The who, how, what and why of PPI (Gary Hickey, INVOLVE)
• Writing a lay abstract (Sean Driver, NALA)
• Budgeting for PPI (Lucy Whiston, PPI Ignite Network at DCU)
• PPI principles in the co-design of an adolescent health literacy intervention
• PPI examples from PPI Ignite Network at DCU Partners 

PPI with children and young people 2021 seminar recordings

• A rights based approach to PPI with children and young people
• Developing and operating a young person advisory group
• Participatory health research with children and young people
• PPI with children and young people through the TUSLA independent ethics committee

PPI with children and young people 2022 seminar recordings

• Practical techniques and participatory methods for embedding children and young people’s involvement in health and social care research
• Process of establishing the Young Person's Advisory Group at the National Children's Cancer Service
• Research and data project examining the lives of children in care and adults who were in care as children: planning for the inclusion of public and patient involvement 

Follow @PPI_Ignite_DCU for links to helpful resources and events e.g. PPI in Research Seminar Series

Join the DCU PPI Ignite mailing list.

If you are looking for specific resources please contact ppi@dcu.ie